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AUTISM DAY - 80,000 CHILDREN CRY FOR HELP
On first ever UN World Autism Awareness Day, parents and teachers lament lack of facilities in Mumbai..Alifiya Khan Mumbai
 
AS SEVEN-YEAR-OLD Ravi blows bubbles from a dish, his feet start tapping to the tunes of ‘Dard-e-disco,' his favourite score. He loves to sing and dance like any child of his age. The only difference, he doesn't speak except for a few words.

Ravi is lucky still. He goes to a special school called Support for Autistic Individuals (SAI), Santacruz. But a majority of the 80,000-odd autistic children in the city are not as privileged, as the capacity across eight schools and 32 other institutions dedicated to this cause is limited to about 1,000.

On the first World Autism Awareness Day proposed by the UN General Assembly on April 2, autistic children in Mumbai remain largely neglected with facilities too inadequate for the number of such children.

Care is of the essence to train these children and ba sic safety precautions are important. At SAI, swings have been replaced with benches, toys have taken the place of notebooks and storytelling sessions are the most ‘serious' classes. The most important lesson is to be polite – saying ‘hello' and ‘thank you' is a must.

"Our children don't like to socialise, so teaching them to say hello may seem trivial but actually means the world to us," said Bina Modak, resident of Dadar whose son has autism.

"Special schools are important as they help to bring some amount of normalcy in the students' lives. Unfortunately there are barely any schools for autistic children , as compared to the number needed. We need one teacher per student and that's why it is difficult to accommodate many students," said SAI principal Kamini Lakhani.

"These children need to be taught simple skills like walking in a queue, waiting for their turns, sitting in a group, enjoying play et cetera. But the question is how many will get to learn?" asks Chitra Iyer, president of the Forum for Autism.

"The government must allot some space for these schools or support those who want to expand their facilities," she opines.

According to some, inclusion of autism in the Persons with Disability Act would help. "Autistic individuals and schools for autistic children will be entitled to many concessions and privileges, including government funding, if the disease is included in the act. Hence the main focus of activists is to achieve this goal," said Dr Rubina Lal, president of the Society of Parents of Children with Autistic Disorders (SOPAN).

Lack of certification centres is yet another concern. "There is only one certification centre in the city that is , J.J. Hospital. It's not physically possible for people living in far off suburbs to go there, so more government hospitals should be authorised," said Iyer, adding that such certificates entitle parents to tax exemptions up to Rs 75,000.

WHAT IS AUTISM?

Brain development disorder that impairs communication and social interaction and causes restricted and repetitive behaviour.

It begins at birth or within the first two years of life.

As its cause is unknown, it is incurable.

Autistic boys outnumber girls four-to-one.

One in 160 children is autistic.

Most autistic children are normal in appearance, but engage in puzzling and disturbing behaviour that is markedly different from typical children.

The earlier a child is treated, the better the chances of improvement.

1 HIGH FUNCTIONING AUTISM: They have a problem of communication and lack social skills, but they can be trained. They keep repeating, don't answer questions, do not use pro nouns, engage in irrelevant talk. A combination of therapy and education is prescribed for them.

2 LOW FUNCTIONING AUTISM: They cannot be made to learn because they are severely mentally challenged; they're functioning at low IQ level. They are not toilet-trained; don't interact at all, stay in their own world. Changes in routine upset them, and they cling to rituals. Therapy is the only solution.

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Woman on a mission..Pallavi Golar
 
SHE HAD gone through two miscarriages, was in depression and attempted suicide too. But architect Suhasini Malde's (50) life changed once she found her life's mission.

Suhasini had everything in life, except for a child. The problem could have been solved by adopting one, but Suhasini decided she didn't want to give a better life to one child only.

With help from her husband Ravi and friend Achyut Godbole, Suhasini started Maharashtra's first autism institute, Ashiana Institute for Autism, in 1999 in a municipal school in Andheri (East).

"There was little awareness about autism. We started off with just six children; today, we have 40. Ours was the first such institute, but five others have opened in Mumbai alone now," said a proud Suhasini. Handling the children is no easy task. "We opt for 1:1 student-teacher ratio at ear ly intervention. Later, the ratio is 2:1. We have 12 specialised teachers," she said.

As an architect, said Suhasini, there is tremendous satisfaction when a design evolves out of nothing into a beautiful struc ture. "But I feel far more satis fied with the creation of Ashi ana, which will nurture these beautiful children after I am gone.

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Autism could not kill her spirit...Alifiya Khan Mumbai
 
JYOTI RAO wept for joy when her seven-year-old daughter, Anuradha, won the first prize in a sports competition, 33 years ago.

Anuradha, who has autism, is now 40 and is self-reliant today.

"It may not be a great achievement for many, but that was the most defining moment for us. My child lived in an isolated world, it was great to hear people clapping for her," said Rao, a resident of Kalina.

‘Annu', as she is fondly called, is an employee of Dilkhush School in Juhu. "She is a perfectionist and her needlework is amazing. With Annu, I have learnt to enjoy simple things like a smile or a spontaneous hug, that people take for granted," said Rao, who shifted from Kanpur to Mumbai for her daughter's treatment.

Anuradha, who is fond of her nieces, cannot talk but can vividly remember many of old Rajesh Khanna song sequences.

"The first time I heard her singing was when she was in the bathroom, she was repeating a soap advertisement jingle. I was glued to the door," recalled Rao.

Rao does not have any regrets. "I have my entire life for her. My only worry is that she doesn't realise what's dangerous for her," said Rao.

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URL: http://epaper.hindustantimes.com/artMailDisp.aspx?article=02_04_2008_008_007&typ=0&pub=264

URL: http://epaper.hindustantimes.com/artMailDisp.aspx?article=02_04_2008_008_006&typ=0&pub=264

URL: http://epaper.hindustantimes.com/artMailDisp.aspx?article=02_04_2008_008_003&typ=0&pub=264